My story started about 14 years ago.  I kept getting a lot of infections that just kept coming back and then I noticed my skin hurt.  I described it as if it was being burned.  The doctor did some test and was sending me to a Rheumatologist.  He said I had a connective tissue disease and I was scared to death.  The first doctor that I went to told me I had Lupus and gave me all the reading material and put me on Plaquenil.  I went in for my second visit and he said I had an autoimmune disease.   (My ANA was positive, very high.) 

     After a couple of years, I changed doctors and I have now been with the same one for 11 years.  Pretty much the same thing happened there but I have stuck it out.  Two years ago, she diagnosed me with Sjogren's and Fibromyalgia.  Then recently with Myositis.

     I still work, but I have days that I can hardly go.  I have a lot of joint pains, muscle pains, and recently my spine is hurting a lot.  My biggest thing is when I have a flare and I'm just sooo tired that when I lie down it doesn't even get you rested   It's really hard to try and explain this to people.  They don't understand, not even your family.  I would like to hear from those of you that have any suggestions.

God Bless You.

Story Copyright © 2007 Pat